Happy 4th!

Many of our kids are sensitive to visual or auditory overstimulation on the holiday which can make it challenging.

How can we make it as enjoyable and safe as possible if you are out at a party?

·        Be safe first! Wandering and accidents can happen with being at a party increasing the risk.

·        Make sure your child has some form of ID on them.

·        Take a picture of your child that day in case they get lost so they can be found more easily.

·        Be vigilant around pools since drowning is a leading cause of death with autism.

·        Take your child to an area to escape if they become sensory overloaded.

·        Bring headphones and other comforting items.

We’re on day 4 of 30 of our GFCF challenge- we can do it!

Here are some tips to avoid any infractions if you’re at a party:

·        If you’re at an event where you don’t know the food that’s being served, bring meals, snacks, and desserts with you.

·        The better you are prepared, the less likely for it to happen.

·        Remind people around your kids that they can’t have gluten and casein like having a peanut allergy- our friends sometimes like to give our kids treats without knowing about the diet

·        If there is an infraction, don’t sweat it.

Most importantly, enjoy the holiday with your family and DM me if you need any support!

Could This Be The One?

I heard a webinar this past weekend from The Brain Foundation about a new supplement, Neuromodin, that they are funding a clinical trial on for children from ages 5-12.

Over the past few years, the same pharmaceutical company that has been working on getting FDA approval for Suramin to treat autism has been slowly progressing through FDA trials.

Suramin works on a pathway that targets the cell danger response so that when a child’s body is placed under stress from whatever the cause, the mitochondria will not switch into this danger response which causes loss of ATP which is the currency of energy.

Neuromodin has emodin, a plant compound derived from Japanese knotweed, and working in a similar fashion as Suramin to modulate purinergic signaling to halt the cell danger response through different pathways.

This is very encouraging knowing that we could have something to address a potential root cause of autism- the cell danger response causing the mitochondrial to lose energy.

Without mitochondria producing energy due to being in defense mode, the brain cannot function at full capacity which can lead to ASD.

Since Neuromodin is a supplement, it isn’t required to undergo FDA trials like Suramin; however, its manufacture, Polomar Health, wants to test it before rolling it out to market which I think is judicious.

It’s always encouraging when there’s something new on the horizon.

We’ve been through this with many drugs like Secretin but often the drugs fell short of what was forecasted.

Let’s pray that this will provide some benefits to our community.

If you’re interested, here’s a link to the criteria to become enrolled in the trial: https://brainfoundation.org/neuromodin/.

We are empowering families to find root causes such as mitochondrial dysfunction in order to heal.

Find out how the Autism Healing Program can help your child by scheduling a free discovery session at https://myhopewellness.satoriapp.com/offers/268129-discovery-session.

Follow us on IG @myhopewellness for the 30-day GFCF challenge starting to help improve your child’s health.

I’ll be live on IG at 2 PM on 6/30 to help guide you.

You can download your free GFCF guide at https://www.myhopewellness.com/gfcf-challenege.

Have You Attempted Going GFCF?

One of the first things that you hear about when entering the biomedical space of ASD is the gluten free casein free (GFCF) diet. With the many challenges that we parents are dealing with, it can seem overwhelming to take on a restrictive diet, especially with many of our kids being limited with what they are already eating which in many cases consists of gluten and casein.

Why are gluten (the protein in wheat) and casein (the protein in dairy) such problems for many of our kids?

·        They can affect folate metabolism, which is critical for brain development, detoxification, and making energy.

·        They can cause leaky gut leading to food and nutrients not being absorbed properly leading to metabolic imbalances and widespread inflammation.

·        Gluten and casein bind to opioid receptors in the brain which can have addictive effects on the brain and lead to many of the symptoms we see in autism.

·        They can cause a mast cell reaction similar to a food allergy which induces a systemic inflammatory response worsening a leaky gut which leads to a “leaky brain.”

·        Gluten and casein can glutamate levels increase which lead to more excitability which increases anxiety, chance for seizures and more stimmy behaviors.

The research supports a GFCF trial for our kids.

Who doesn’t want improvement in language, behaviors, energy, cognition, focus, allergies, and GI symptoms?

GFCF has been a game changer for many families, and we don’t have to worry about putting anything into our system that could cause side effects, however there can be mild “withdrawal symptoms” just like removing anything that the body has become accustomed to.

Anecdotally, approximately 2/3 of children with autism respond favorably to GFCF.

Some kids can have sensory defensiveness due to taste or texture of the new foods, so be prepared!

We don’t want our kids to become nutritionally deficient if they are not receptive to dietary changes, so take it one step at a time if you are meeting resistance- for example, remove casein first.

Make sure to get clearance from your practitioner, use organic GFCF products because glyphosate can cause leaky gut just like gluten and casein, and avoid ultra processed GFCF foods that contain ingredients you can’t pronounce.

There are many good reasons to consider implementing a GFCF diet.

We’ll be doing a 30-day GFCF challenge starting July 1, so follow me on Instagram @myhopewellness for pointers to help guide you through it and subscribe to our newsletter for up-to-date info on the challenge.

Check an Autism Treatment Evaluation Checklist (ATEC) pre and post starting GFCF to measure effects.

Here’s a link to the ATEC: https://static1.squarespace.com/static/5bd0998ff8135a0c3bfefdc9/t/5bfc352b8985839163d1cb76/1543255339852/ATEC-AUTISM+Spectrum+Disorder++Checklist.pdf

Let’s do it!